Temporal organization of life in mothers of children with autism spectrum disorder

Authors

DOI:

https://doi.org/10.5281/zenodo.11582860

Keywords:

time management, mothers, caregivers, autism spectrum disorder

Abstract

Introduction: mothers of children diagnosed with autism spectrum disorder tend to play the role of caregivers of their children, which could limit their time to satisfy their needs for self-care, recreation and/or as workers by prioritizing the satisfaction of needs of said children. Limitations in the development of temporal organization skills and inequality in the distribution of family functions can lead the mothers of these children to suffer exhaustion, irritability, stress, and anxiety; reasons why attention should be paid to the development of this skill.

Objective: to characterize the development of the temporal organization of life skill in mothers of children diagnosed with autism spectrum disorder.

Method: the investigation was carried out between January and June 2020. Mothers of children who study at the “Haydeé Santamaría Cuadrado” Special School in the municipality of Holguín, Cuba participated. It is a qualitative descriptive study of multiple cases. In the process of obtaining information, techniques such as: observation, pie, composition and semi-structured interview were used.

Results: mothers organize their time based on their children with autism spectrum disorder, with a tendency towards immediacy. It was identified that the spheres in which they spend their time are family and work, leaving spaces of time for self-care and recreation lacking.

Conclusions: the people investigated have limitations in the development of the ability to temporally organize life.

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References

Osorio C, Velázquez Z. IV Jornada de Psicología Aplicada PSICAP 2018: El reto de vivir con un niño/a autista: aproximaciones a la organización temporal de la vida cotidiana de una madre. Holguín: Universidad de Holguín; 2018. [citado 20 Abr 2021]. p. 10.

Fariñas G. Maestro, para una didáctica del aprender a aprender. La Habana: Pueblo y Educación; 2004. p.147.

Universidad de la Habana. Guía de estudios de Psicología educativa I. La Habana: Universidad de la Habana; 2005. p.60.

Hernández R, Fernández C, Baptista MC. Metodología de la Investigación. 6a. ed. México: McGraw Hill Education; 2014. p.600.

Suárez L. Un acercamiento al desempeño profesional de los maestros de la enseñanza primaria. [Tesis de grado]. Cuba: Universidad de la Habana; 2007. p.80.

Rodríguez G, Gil J, García E. Metodología de la investigación cualitativa. La Habana: Editorial Félix Varela; 2004. p.378.

Bujaico DM. Calidad de vida de las madres de niños con Trastorno del Espectro Autista del centro de terapias integrales Hatary. [Tesis de grado en Internet]. Perú: Universidad Nacional Federico Villarreal; 2022. [citado 15 Feb 2024]: 62. Disponible en: http://190.12.84.13/bitstream/handle/20.500.13084/7003/UNFV_FTM_Bujaico_Ramirez_Dalia_Milagritos_Titulo_profesional_2023.pdf?sequence=1&isAllowed=y

Miele F. Avaliação da sobrecarga e qualidade de vida de mães de crianças com o transtorno do espectro do autismo. [Tesis de maestría en Internet]. Brasil: Universidad Presbiteriana Mackenzie; 2017. [citado 15 Feb 2024]:57. Disponible en: https://dspace.mackenzie.br/items/444c099e-5a11-4d4b-9f84-04e52b35a585

De Arruda J, Silva P, Perrelli G, Cursino I, Vieira S. Avaliação da qualidade de vida e sobrecarga de trabalho de cuidadores de adolescentes com transtorno de espectro autista: estudo exploratório. Revista Uningá [Internet]. 2017 [citado 10 Feb 2024]; 51(2):15-20. Disponible en: https://revista.uninga.br/uninga/article/view/1353

Bagnato MG, Barboza E. El bienestar emocional en madres de hijos con diagnóstico de TEA. Revista de Psicología (UNLP) [Internet]. 2019 [citado 10 Feb 2024]; 18(1):46-60. Disponible en: https://revistas.unlp.edu.ar/revpsi/article/view/7438/6550

Canseco ND, Vargas JM. Comprendiendo los niveles de ansiedad y los estilos de afrontamiento en padres con hijos con TEA. CASUS [Internet]. 2020 [citado 10 Feb 2024]; 5(3):131-137. Disponible en: https://dialnet.unirioja.es/descarga/articulo/7770607.pdf

Schieve L, Drews-Botsch C, Harris S, Newschaffer C, Daniels J, DiGuiseppi C, Windham C. Maternal and Paternal Infertility Disorders and Treatments and Autism Spectrum Disorder: Findings from the Study to Explore Early Development. J Autism Develop Disor [Internet]. 2017 [citado 10 Feb 2024]; 47(12):3994-4005. DOI: https://doi.org/10.1007/s10803-017-3283-1

Zaidman-Zait A, Mirenda P, Duku E, Vaillancourt T, Smith IM, Szatmari P, Bryson S, Fombonne E, Volden J, Waddell Ch, Zwaigenbaum L, Georgiades S, Bennett T, Elsabaggh M, Thompson A. Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism [Internet]. 2017 [citado 10 Feb 2024]; 21(2):155–166. DOI: https://doi.org/10.1177/1362361316633033

Ruiz N, Antón P, González E, Moya L. Consecuencias del cuidado de personas con Trastorno del Espectro Autista sobre la salud de sus cuidadores: Estado actual de la cuestión. Rev Elect Psicolog Iztacala [Internet]. 2012 [citado 10 Feb 2024]; 15(4):1571-1590. Disponible en: https://apacv.org/wp-content/uploads/2014/08/guias_4_consecuencias-del-cuidado.pdf

Sanini C, Brum EHM, Bosa CA. Depressão materna e implicações sobre o desenvolvimento infantil do autismo. Rev Bras Cresc Desenv Hum [Internet]. 2010 [citado 10 Feb 2024]; 20(3):809-815. Disponible en: https://scholar.google.com.mx/scholar_url?url=https://www.revistas.usp.br/jhgd/article/download/19989/22075&hl=es&sa=X&ei=lhFuZZ_0L5LcyATc66aYDA&scisig=AFWwaeadNgytHEjzUmrtdpOeW2dg&oi=scholarr

Published

2024-09-22

How to Cite

1.
Osorio García CM, Velázquez Martínez ZL, González Portelles N. Temporal organization of life in mothers of children with autism spectrum disorder. Rev Inf Cient [Internet]. 2024 Sep. 22 [cited 2025 Apr. 19];103:e4661. Available from: https://revinfcientifica.sld.cu/index.php/ric/article/view/4661

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Section

Original Articles